What is the S4CCC?
The S4CCC virtual conference is designed for multidisciplinary CCC leaders worldwide. Our goal is to identify good practices and propose solutions to the challenges faced by cleft professionals in resource-constrained settings. Interdisciplinary Solution Groups (SGs) complete research that shapes the recommendations presented across four Roundtables on March 20.
What is a Solutions Group?
A Solutions Group (SG) is a diverse, interdisciplinary group of 8-15 global cleft professionals convened to consider and recommend key topical guidelines for LMIC cleft teams pursuing a Comprehensive Cleft Care (CCC) approach.
SGs engage in a time-limited “sprint” process to collectively prepare and facilitate a 75-minute Roundtable, followed by publishing guideline recommendations. The 2-month SG sprint process includes:
Foundation
Review ~2 key topical papers, reports, or tools
Forming Recommendations
Meet fortnightly 4x for 75-min SG meetings
Create and distribute survey + analyze results
S4CCC 2025:
Presentations & Discussion
Present findings and recommendations + facilitate a Roundtable Discussion with conference participants
Dissemination
Revise Recommended Guidelines
Publish Guidelines online
Pre-Work: Dec 2024
Pre-Work: Dec 2024
Phase 2: March 20, 2025
Phase 3: Mar-June 2025
2025 Conference Sessions
Quality Care for Mothers and Newborns: Cleft Within the Big Picture
What can we learn from a systemic picture of care quality for infants and families in resource constrained contexts? What do we know about the situation for newborns with diagnosed or undiagnosed difficulties after they leave the hospital or clinic? How might the cleft care community helpfully position its solutions-focused work within these wider themes?
Join Dr. Taylor as we seek to anchor our S4CCC 2025 discussions within the landscape of LMIC health systems overall.
Effective Community-based CCC Interventions
What strategies lower the burden of care for families who live far from a CCC hospital or centre?
Co-Chairs
Suraj Subramaniyan
SLP, India
David Gillett
Surgeon, Australia
Making the Case for Core CCC Disciplines
How do we effectively advocate, internally and externally, for year-round CCC care?
Co-Chairs
Omolola Orenuga
Pediatric Dentist, Nigeria
Ruben Ayala
NGO, USA
Multidisciplinary CCC Team-building
What practices are most effective in building and maintaining strong CCC teams?
Co-Chairs
Solomon Obiri-Yeboah
Surgeon, Ghana
Emily Gallagher
Pediatrician, USA
Supporting Parents in CCC Treatment Decision-making
How do we support parents in making informed decisions about their child’s CCC treatment plan?
Co-Chairs
Sara Horne
SLP, USA
Nicola Stock
Psychologist, UK
S4CCC Conference Schedule
Orientation & Welcome
Explore the conference platform and the pre-work completed by each Solution Group.
7:30 AM – 7:45 AM (EDT) | 11:30 AM – 11:45 AM (GMT)
Opening Plenary: Dr. Sebastian Taylor
Quality Care for Mothers and Newborns: cleft within the big picture
Dr. Sebastian Taylor heads the Global Child Health Programme at the UK's Royal College of Paediatrics and Child Health
7:45 AM – 8:10 AM (EDT) | 11:45 AM – 12:10 PM (GMT)
Break (5 mins)
8:10 AM – 8:15 AM (EDT) | 12:10 PM – 12:15 PM (GMT)
Roundtables A: SG 1 & SG 3
Attend one of the following
SG 1: Effective Community-based CCC Interventions
SG 3: Making the Case for Core CCC Disciplines
8:15 AM – 9:25 AM (EDT) | 12:15 PM – 1:25 PM (GMT)
Break (15 mins)
9:25 AM – 9:40 AM (EDT) | 1:25 PM – 1:40 PM (GMT)
Roundtables B: SG 2 & SG 4
Attend one of the following
SG 2: Multidisciplinary CCC Team-building
SG 4: Supporting Parents in CCC Treatment Decision-making
9:40 AM – 10:50 AM (EDT) | 1:40 PM – 2:50 PM (GMT)
Break (5 mins)
10:50 AM – 10:55 AM (EDT) | 2:50 PM – 2:55 PM (GMT)
Closing Plenary
From Roundtables to practical CCC tools
10:55 AM – 11:45 AM (EDT) | 2:55 PM – 3:45 PM (GMT)
Browse reports from
our past S4CCCs below:
S4CCC: Propelling Learning Through Collaborative Research
In March, 2023 over 130 cleft professionals largely from LMIC backgrounds came together to participate in dialogue and hear from the Solutions Groups.
The diverse interdisciplinary Solutions Groups applied sprint methodology over eight weeks to form recommendations on Three pertinent themes of Comprehensive Cleft Care (CCC).
- Getting Started with Patient Reported Outcomes
- Initiating and Sustaining Parent and Patient Support Groups
- Integrating Psychosocial Care Across Cleft Specialities
Available in english. Disponible en español. Disponible en français.
S4CCC: Covid & Beyond
Over 120 cleft professionals from around the globe came together to collaborate and generate solutions for delivering Comprehensive Cleft Care (CCC) in Low and Middle Income Countries (LMIC) amidst COVID and beyond.
Available in English. Disponible en español
S4CCC: Responding to COVID
Over 140 participants from around the globe actively engaged in a conference experience designed to build connections between cleft professionals and generate solutions to delivering CCC in low and middle-income contexts amidst COVID.
The International NGO sponsors of the Circle of Cleft Professionals (CoCP) are proud to support the S4CCC Conference.
